Collection: The Aidyn Mae Hope Fund x Niko's Tee Co

In honor of Rare Disease Day, Niko's Tee Co is so honored to partner with The Aidyn Mae Hope Fund - an incredible local, Jacksonville organization.

Aidyn Mae is a 2 ½ year old little girl who suffers from FOXG1 syndrome, an incredibly rare brain disorder with less than 1,000 cases diagnosed globally. The FOXG1 gene is found in the brain and is responsible for creating a vital protein crucial for normal brain development and functionality.  The deficiency of this protein has robbed Aidyn of the ability to sit up, crawl, walk, feed herself, or speak. Aidyn’s family has partnered with Believe in A Cure, a nonprofit founded by a fellow FOXG1 parent.

This nonprofit is leading intensive research efforts into a Gene Replacement Therapy (GRT) for FOXG1 syndrome, focusing on providing a new copy of the FOXG1 gene to control the production of the protein and improve the symptoms that take place due to the deficiency. Researchers have made great strides in pre-clinical trials and with the right funding could be at the human clinical-trial stage within the next 2-3 years.